If you only knew...
I post what's on my mind.
Being high on Ativan during my MRI.
The machine was speaking. It kept saying words over and over like
- bunny
- daddy
- baby, don’t die
- duck
I don’t remember what else but it is was pretty cool. If you ever have an MRI, see if you can come up with words from the noises.
Have you recognized words when you take an MRI?
Mangoes, plums, nectarines, pineapple, oranges, apples, watermelon, kiwi berries, grapes, bananas , and peaches.
Stop teasing me.
I love that I’ve been sleepy all week but on the day I need to sleep and wake up somewhat early, I can’t sleep.
I hope the ambien works and lets me wake up in time.
My house smells so good. I love the smell of fruit. Why must I be NPO until 11? I’m hoping I sleep for most of that time. Lately, I’ve been waking up at 6am.
Have you ever heard of a kiwi berry?
The guy at whole foods described it as a kiwi without the hair.
This little fruit is amazing. It looks like a grape but tastes like a kiwi.
Today was opening day at Whole Foods. Boy, was it crowded.
I was so overwhelmed an employee came up to me and said,” Don’t worry, it will get better.”
We got a bunch of fruit: oranges, mango, nectarines, pineapple, peaches, and kiwi berry. Nature’s Fast Food
I also got corn, artichokes, asparagus, and found masaman curry paste and almond milk ice cream.
I love masaman curry so I was excited to find the vegan version. I also love almond milk. I didn’t love the coconut milk ice cream. So I’m excited to try it.
When I walked into the store, an employee asked if I wanted to try a kiwi berry.
If I was able to cook, I’d have a field day in the store but it was still pretty cool just wish it was less crowded.
I hope I can start cooking again soon.
Ugggh eating was fun but the accompanying bloating and pain is not. Body please cooperate a little?
I no longer enjoy eating for this very reason.
My appointment with my orthopedic really upset me and makes me not want to use the wheelchair. My mom talked with my oncologist and believes that I am hurting and it has something to do with my cancer treatment back in 2005. He said that the orthopedic is only used to treating patients with broken bones and doesn’t realize everything that the chemo does.
I have my MRI of the pelvis with contrast on Saturday morning, once I get my results then I go to the cancer orthopedist in NYC.
I can’t wait till I get this thing figured out.
for not being able to leave the house and buy food
for not having enough money to have food delivered, or be able to pay a shopper
and it goes double for a pain flare
BUT WOAH do you look GREAT! you’re practically glowing!”
*last week I had to beg for a friend to go buy dog food because I couldn’t make it to a store for my furbabies* Which caused some SUPER BAD EMOTIONS which were entirely unhelpful for my depression.
YES THIS. SO MUCH THIS. I HEAR SHIT LIKE THIS ALL THE FUCKING TIME.
“That’s so awesome that you lost so much weight!”
“I lost weight because I’ve been sick with MS and crippled with anxiety.”
“But hey - you lost weight! THAT IS AWESOME.”
No. No it’s not.
oh that reminds me when I was sick from cancer. My step-grandmother was like well at least you lost weight.
yeah, thats what happens when you can’t eat, are bed ridden, and are having poison injected into your body but at least I lost weight, right?
They are 1 percenters who are 100 percent despicable.Some wealthy Manhattan moms have figured out a way to cut the long lines at Disney World
I love when people say: I had a _______ and they died of cancer.
My mom told a lady that I had cancer. First she said no, then she said, ” I had a sister with Leukemia but she died from it.”
How is that suppose to make me feel?
Sloan and Kettering for the win!
The doctor called my mom back and he said it sounds like the side effects of the 3 chemo drugs I got in my spine. He is referring me to the hip oncology specialist.
The problem is they don’t accept our insurance because I don’t have medicaid yet. We have to wait for override authorization. The other thing that scares me is all the walking in NYC.
Are there any spoonies in NYC that can give me tips for navigating the city?
I was so excited today.
My orthopedist basically said because I am in a wheelchair that is why my hip is hurting because nothing on the tests explain why I’m hurting.
He wants me to do physical therapy again.
My mom asked for an MRI with contrast and he said to her,if it’ll make you feel better.
I’m starting to feel like he doesn’t believe me anymore.
He wants me to walk, so I’m gonna start walking again despite the pain. He wants proof that it hurts.
No wonder why I told my social worker at 16, when I turn 18 I am not going to the doctors anymore. They did a mini intervention saying that because I had cancer I had to.
Doctors give me a headache. Just get me into Sloan, fix me, and everything will be alright.
